Palliative and End-of-Life Care in Ireland (PELCI)
Project Title: Palliative and end-of-life care data in Ireland (PELCI): establishing the state of the nation, mapping future directions.
Challenge: We currently know little about the end-of-life phase in Ireland: where people die, what health care they use, how family and friends provide unpaid care, and how palliative care shapes these experiences. This project aims to improve knowledge and understanding of these questions.
Outputs: This project will provide the HSE with new information to understand current conditions, and to plan future service provisions and improvements. Our target audience also includes practitioners, the public, patients, carers, and national and international research communities.
Funding and support: This research was funded by the Health Research Board (Project ID#: SDAP-2019-012).
Timeline: March 2020 – February 2022
Keywords: Palliative Care; Chronic Disease, Delivery of Health Care, Integrated; Outcome Assessment (Health Care); Health Policy
Our co-leads @petermay_tcd @BriMJohnston have a blog on the EAPC site today.
They discuss the importance of including economic evaluation in intervention studies, including this year's Horizon Europe palliative care call.
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Economic evaluation in palliative care: Considerations for clinical investigators https://eapcnet.wordpress.com/2021/05/19/economic-evaluation-in-palliative-care-considerations-for-clinical-investigators/
Financing the Care of the Seriously Ill—“Hell No, I Won’t Go” https://ja.ma/3cqnDNj via @JAMAHealthForum part of @JAMANetwork
Now out in @AGSJournal and led by @JoanMTeno, we find that decedents in MA received less costly or potentially burdensome care at the end of life compared to TM or patients attributed to ACOs. https://doi.org/10.1111/jgs.17225