Palliative and End-of-Life Care in Ireland (PELCI)
Project Title: Palliative and end-of-life care data in Ireland (PELCI): establishing the state of the nation, mapping future directions.
Challenge: We currently know little about the end-of-life phase in Ireland: where people die, what health care they use, how family and friends provide unpaid care, and how palliative care shapes these experiences. This project aims to improve knowledge and understanding of these questions.
Outputs: This project will provide the HSE with new information to understand current conditions, and to plan future service provisions and improvements. Our target audience also includes practitioners, the public, patients, carers, and national and international research communities.
Funding and support: This research was funded by the Health Research Board (Project ID#: SDAP-2019-012).
Timeline: March 2020 – February 2022
Keywords: Palliative Care; Chronic Disease, Delivery of Health Care, Integrated; Outcome Assessment (Health Care); Health Policy
Interesting projections being reported about increases in dementia cases. Check out our recently published ‘Dying and Death’ report to see our chapter on increasing dementia trends specific to the Republic of Ireland - https://hospicefoundation.ie/wp-content/uploads/2021/11/Dying-and-Death-in-Ireland-what-do-we-routinely-measure-how-can-we-improve-2021.pdf
A recent study published in @TheLancet predicts global #dementia cases could 'almost triple by 2050' unless risk factors like #smoking #obesity & high #bloodsugar are addressed. See our top tips for protecting #brainhealth: http://bit.ly/3KwxaTw https://www.rte.ie/news/world/2022/0107/1272304-health-dementia/ via @rte
Make sure to check out these @OBShealth webinars that are coming up! Our PaCE group’s @BriMJohnston and @CEMNormand are on the calendar!
➡️Series of @OBShealth webinars on the #economics of #ageing started today! Our own @BriMJohnston will present at the upcoming webinar next week on 25th January and our own @CEMNormand will moderate the last one 1 February. Sign up below⬇️👩💻 https://twitter.com/OBShealth/status/1471069387511808000
Palliative Care researchers, have you generated data with people approaching the end of life using visual research methods? I would love to hear about it @gemma_allen1 @JedJerwood @TuffreyWijne @johnmacartney @Lucy_Selman @Dying_Margins