Palliative and End-of-Life Care in Ireland (PELCI)
Project Title: Palliative and end-of-life care data in Ireland (PELCI): establishing the state of the nation, mapping future directions.
Challenge: We currently know little about the end-of-life phase in Ireland: where people die, what health care they use, how family and friends provide unpaid care, and how palliative care shapes these experiences. This project aims to improve knowledge and understanding of these questions.
Outputs: This project will provide the HSE with new information to understand current conditions, and to plan future service provisions and improvements. Our target audience also includes practitioners, the public, patients, carers, and national and international research communities.
Funding and support: This research was funded by the Health Research Board (Project ID#: SDAP-2019-012).
Timeline: March 2020 – February 2022
Keywords: Palliative Care; Chronic Disease, Delivery of Health Care, Integrated; Outcome Assessment (Health Care); Health Policy
Outstanding presentation from Joanna Davies of work done with @kesleeman, @DrFlissMurtagh and others.
Next up today @ #PCRNSymposium10 is Joanna Davies, Dunhill Medical Trust PhD Research Training Fellow. Joanna talk 'Beyond observing the problem –understanding why socioeconomic inequality exists in end of life care' will be followed by a Q&A, Chaired by @petermay_tcd
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Karen is presenting work done with PaCE leads @BriMJohnston @petermay_tcd. Full paper here:
https://hrbopenresearch.org/articles/2-35/v2
The number of people in Ireland living & dying with palliative care needs will nearly double to 2050, much faster growth than the EU average.
“Systems must need to be designed to meet these needs and resources should allocated fairly.”
Prof Karen Ryan at #PCRNSymposium10
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